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Claiming your right to risk when you live with disability
When Ellen Fraser-Barbour was 19, she decided to travel on her own to India. Everyone told her it was a bad idea.
"You are crazy," they said. "You are deaf. You are blind! You can't travel on your own!" But Ellen decided that was their anxiety. It wasn't her anxiety. So she persevered with her plan.
Listen to the newest Purple Orange podcast episode on the link above.
Read the story and see photos of Ellen's trip to India here.
A MOMENT OF ME
I was 19 years old when I had a rare non-blood related stroke caused by an abscess on my brainstem pons (think of the brainstem as an apple and the seeds are the abscess). I was in a coma for 3 weeks, I wasn’t supposed to wake up! I survived, but with a condition called Locked-in Syndrome, I could not communicate verbally or move.
I came to Julia Farr Centre (now called Highgate Park) in 1993, 13 March. My nana’s birthday. For the first 5 to 6 years, I didn’t go out in public. My reason for this was that my face was severely affected, and if I couldn’t cope with the way I looked, then how could the public! I was also in deep denial and depression for 19 years! All I had was mum, nurses and TV. Even when technology improved I refused to learn how to use a PC.
When I did start going out, I would only go out with mum. It wasn’t until my birthday in June, 2008, when my nana rang me and I heard her voice. There was something in her voice that told me that I had to go see her now, but she lived in Perth. How was I to get to Perth when I had a disability? I mentioned to Ross, my carer, about wanting to go to Perth. Unknown to me, he had done it all before, and soon enough I was on a plane with mum and Ross to Perth.
We Acknowledge And Pay Our Respects To First Australians
We want to see a world where everyone is included, respected and gets a fair go in life. We can't get there without acknowledging that our office sits on the land of the Kaurna people. Like people living with disability, we recognise that Aboriginal and Torres Straight Islander people continue to experience inequality and division. We want them to know we are their allies. We believe their culture, history, diversity and deep connection to the land deserves our highest respect.
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